A Heart’s Journey: A Patient and Caregiver Guide to Heart Transplant

A Heart’s Journey is an interactive webpage featuring expert insights, helpful tools, and, most importantly, real stories from people with lived experience. Through personal videos and interactive content, you’ll hear from individuals who have gone through the transplant process themselves.

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New Animated Videos: Supporting You on Your Heart Failure Journey

Our new videos serve as a valuable companion to our resource, Living with Advanced Heart Failure: Coping with Symptoms and Uncertainty. Together, these resources offer guidance on managing symptoms, adapting to change, and planning for the future with confidence.

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Introduction to Patient Engagement in Research Webinar

Always wondered what happens on a research project behind-the-scenes? Wanted to be part of a team interpreting all those results? Join the Heart Hub as we introduce the role of people with lived experience (PWLE) as partners in health research.

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Living with Advanced Heart Failure: Coping with Symptoms and Uncertainty

Download our new guide, Living with Advanced Heart Failure: Coping with Symptoms and Uncertainty, for tips on symptom management, self-care, and planning for the future.

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Heart Failure Medications: A Patient and Caregiver Guide

Understanding Guideline-Directed Medical Therapy for Heart Failure with reduced ejection fraction (HFrEF).

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Welcome to The Heart Hub, created with and for patients, caregivers, and their families.

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Our Partners

An Introduction to Living with Heart Failure

Hear from Paula, who has been living with heart failure, about the importance of living well and taking care of your health.

Heart Pulse

Harnessing the Power of Patient Agency: Celebrating People with Lived Experience in the Creation of The Heart Hub

Learn more about the experiences of our patients and caregivers who helped contribute to the development of The Heart Hub.

Our Stories

I May Look the Same, But…

Read Sharon's story about managing her career, personal life, and self-image following her heart failure diagnosis

Sharon Bray
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Heart2Heart Podcast Series

Join Anne Simard as she interviews Kyle, a husband, father, and heart transplant recipient in our Heart2Heart podcast series

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Isabel's tips for for Medication

Read Isabel's tips for medication and symptom management

Isabel Victal
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Juggling My Roles as a Caregiver

Read Cindy's story about juggling her career and caring for her father who lives with heart failure

Cindy
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1 Million

Canadians are Living with Heart Failure

60,000

Canadians are Diagnosed each Year

Most rapidly rising Cardiovascular Disease in Canada

Three Heart Failure Champions Share Their Stories

Meet Cindy, her father’s essential caregiver; Lori, a congenital heart disease patient who has lived with heart failure all of her life; and Noli, a man who has recently been diagnosed with heart failure. Discover what makes them unique and similar, and what they would like you to know about living with heart failure.

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Appointment Tips for Non-English Speaking Patients

Managing your care when you are a non-English speaker can be difficult – watch Cindy’s tips for non-English speaking patients.

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Our Resources

Organizations and Resources

Canadian Adult Congenital Heart Network pools the knowledge and experience of congenital heart disease professionals in Canada and creates a community of individuals committed to caring for adults with congenital heart disease.  Canadian Cardiovascular Society is the national voice for cardiovascular clinicians and scientists.
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Hello. My name is Paula. I live every day with heart failure.

I was born with hypertrophic obstructive cardiomyopathy. HOCM for short. Basically, it means my heart muscle is too thick, making it harder to pump blood. In 2008, my doctor noticed the murmur associated with my HOCM was getting louder. In 2010, I had to undergo an open-heart surgery to relieve the obstruction. Unfortunately, I had to undergo a second open-heart surgery in 2012, as the first surgery in 2010 was unsuccessful. I was medically managed until 2020 when I underwent a third open-heart surgery to replace the aortic and mitral valves. 
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Mental Health

Mental health refers to a person's emotional, psychological, and social well-being. It is a vital aspect of overall health. How we think, feel, act, and make decisions all play a role in our mental health. 
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