- 1 Studies in Recruitment
- 1.0.1 Testimonial from Bill and Sue Fitzpatrick
- 18.104.22.168 Heart Function Clinic Access Interviews
- 22.214.171.124 TRUE HF – Ted Rogers Understanding Exacerbations of Heart Failure (Apple CPET study)
- 126.96.36.199 TRANSFORM HF Peer Review Panels
- 188.8.131.52 vCHAT
- 184.108.40.206 Women’s Experiences of Heart Failure
- 220.127.116.11 FabrIc-Based REsearch (FIBRE) Steering Committee
- 18.104.22.168 SPOR Patient and Public Topic Suggestions
- 1.0.1 Testimonial from Bill and Sue Fitzpatrick
Studies in Recruitment
Research is key to transforming heart failure care and empowering patients and their caregivers to live better.
We can’t do it without you. Consider joining a research team or participating in a study underway.
Testimonial from Bill and Sue Fitzpatrick
“It’s all volunteer. You give a little bit of time, a little bit of information. Then, you learn from it, you make more connections. It even went as far as getting family involved and having them more educated. And you know and trust that everything proposed is evidence-based, and you are part of it.”
Please note: Each study has its own set of criteria to determine who can participate. This depends on the research question being asked and may include restrictions based on age, behaviours, health status, location, or other traits.
Before enrolling in a study, researchers may ask questions to determine if you are eligible to participate. In some cases, you may have to undergo specific testing, like a blood test or physical exam, to determine whether you can participate.
Heart Function Clinic Access Interviews
Prof. Sherry Grace, York University and UHN
We invite you to participate in our study aimed at understanding the factors that may have influenced your access to a heart function (HF) clinic. We are contacting HF patients in Ontario, including those that did go to a HF clinic and those that did not, to better understand how we can improve HF clinic care.
This study involves one interview (approx. 30 mins) at your convenience. The interview can be held via web (MS Teams), or via phone only if you prefer. We will be asking you about your experience being referred to an HF clinic (if you were), whether anything could have been done to make it easier for you to go to an HF clinic, and about whether you went or not.
Your responses to the questions will be kept confidential. Each interview will be assigned a research identification number to ensure that personal identifiers are not revealed during the analysis and write-up of findings.
If you are interested: please email firstname.lastname@example.org with a suggested day and time for an interview between July 15-Oct 15/2022. We will email you back a consent form with further information, including details on how confidentiality will be maintained, for you to sign back if you are willing. We will also confirm the time for the interview, provide the meeting connection information, as well as the questions in case you would like to review them ahead at that time.
Please note that communication via e-mail is not absolutely secure. Thus, please do not communicate personal sensitive information via e-mail.
Thank you very much for considering this important study.
TRUE HF – Ted Rogers Understanding Exacerbations of Heart Failure (Apple CPET study)
Dr. Heather Ross, PMCC at UHN
The cardiopulmonary exercise test (CPET) is key to determining the likely course of heart failure (HF). This three-month study evaluates whether biometric data from the Apple Watch combined with demographic information, cardiac and blood test results can improve our ability to predict heart failure outcomes among a diverse ambulatory HF population. Patients wear an Apple Watch, use a phone-based app as well as complete daily and monthly tasks to participate. Research equipment is provided for the duration of the research study
- > 22 years of age, male or female
- NYHA functional class I-IV, heart failure with reduced or preserved ejection fraction
- Diverse races/ethnicities
- Physical disability that prevents exercise testing.
TRANSFORM HF Peer Review Panels
Dr. Heather Ross and Dr. Craig Simmons
TRANSFORM HF funds research and trainees focused on digital technologies for equitable access to high-quality personalized heart failure care. Our mission is also to enable patients to become more active in their own health and engage them in all of our programs.
Competitions are described at: www.transformhf.ca/opportunities Patients, caregivers and family members living with heart failure are integral members of our review panel to select funded projects and trainees. If you are interested in joining a panel, email email@example.com.
Dr. Robert Nolan, UHN
Participants living with chronic heart failure are needed for a study using digital behavioral counseling, weekly webcasts, and social network support to improve health status and quality of life for persons living with chronic heart failure. Sites that are currently enrolling participants for vCHAT include: the University Health Network, Sunnybrook Hospital, Mount Sinai Hospital, and The Ottawa Hospital. Participation is 100% virtual and involves weekly webcasts, online behavior counseling materials, and chatroom discussions.
Participation in this study will help strengthen your knowledge, skill, and confidence in managing your chronic heart failure condition. Additionally, participants will have access to free digital counselling and social network support services. Learn more.
Women’s Experiences of Heart Failure
Dr. Susan Law, University of Toronto and Trillium Health Partners’ Institute for Better Health
The purpose of this study is to learn from women’s experiences living with heart failure. The results of this study will be used to support the development of a public-facing module featuring topics important to women living with heart failure, as well as inform future work to design, implement, and evaluate improvements in local services for women with heart failure.
Participation in this study is limited to women (ages 18+) living with heart failure, and involves being interviewed by the research team via Zoom. Volunteers will be compensated for their time. If you are interested in being interviewed or would like to receive more information, please contact the team’s research associate (Michelle Marcinow at firstname.lastname@example.org or 416-565-6732) or the study lead (Susan Law at email@example.com or 416-270-6643).
FabrIc-Based REsearch (FIBRE) Steering Committee
Dr. Azadeh Yadollahi, UHN
The FabrIc-Based REsearch (FIBRE) project team is working on a project that will deliver a revolutionary healthcare platform using smart clothing to deliver care wherever users may be—at home, at work, in a shelter or remote communities.
We are seeking members of the community to join our steering committee to provide advice and valuable suggestions based on their lived experiences:
- Seniors living independently and having a chronic health condition (age 65+)
- Seniors living in assisted living and/or their care providers (age 65+)
The role of the steering committee member will be to provide valuable input on experienced health conditions faced by themselves and their communities, ensure the project is relevant to community needs and to provide diverse feedback on project goals.
The time commitment required by the steering committee member is 1-6 hours per month, (June – September 2022) and members will be compensated for their time through an honorarium ($50/hour).
FIBRE will use smart clothing that unobtrusively monitors biological signals 24/7 and delivers life-saving interventions to protect people who have or will develop complex health conditions. The technologies will enable faster diagnoses, guide just-in-time preventive treatments to reduce disease progression and hospitalization, and provide life-saving interventions. These innovations will transform the healthcare system by empowering users and caregivers to become partners in care.
If you are interested in being a part of the steering committee, please contact: Janitha Shanmugarajan at firstname.lastname@example.org
SPOR Patient and Public Topic Suggestions
SPOR Evidence Alliance
At the SPOR Evidence Alliance, we value the importance of patient identified priorities in shaping the health research landscape, and ultimately informing changes across the health system that address patient needs.
If you are interested in a health topic that you feel is important in improving patient health outcomes and the health system, we would like to hear about it.
Who can submit a health topic?
We welcome all interested patients and members of the public to propose topics for future SPOR Evidence Alliance projects.
What topics are appropriate?
We would like to hear about health topics that identify an opportunity to improve health outcomes, medical or public health practice, and health systems in Canada.
Please note that it is not necessary to submit your topic as a structured research question. If your topic is selected for further study, we will work with you to develop the question.