A Heart’s Journey: A Patient and Caregiver Guide to Heart Transplant

A Heart’s Journey is an interactive webpage featuring expert insights, helpful tools, and, most importantly, real stories from people with lived experience. Through personal videos and interactive content, you’ll hear from individuals who have gone through the transplant process themselves.

New Animated Videos: Supporting You on Your Heart Failure Journey

Our new videos serve as a valuable companion to our resource, Living with Advanced Heart Failure: Coping with Symptoms and Uncertainty. Together, these resources offer guidance on managing symptoms, adapting to change, and planning for the future with confidence.

Introduction to Patient Engagement in Research Webinar

Always wondered what happens on a research project behind-the-scenes? Wanted to be part of a team interpreting all those results? Join the Heart Hub as we introduce the role of people with lived experience (PWLE) as partners in health research.

Living with Advanced Heart Failure: Coping with Symptoms and Uncertainty

Download our new guide, Living with Advanced Heart Failure: Coping with Symptoms and Uncertainty, for tips on symptom management, self-care, and planning for the future.

Heart Failure Medications: A Patient and Caregiver Guide

Understanding Guideline-Directed Medical Therapy for Heart Failure with reduced ejection fraction (HFrEF).

Welcome to The Heart Hub, created with and for patients, caregivers, and their families.

Our Partners

An Introduction to Living with Heart Failure

Hear from Paula, who has been living with heart failure, about the importance of living well and taking care of your health.

Heart Pulse

Harnessing the Power of Patient Agency: Celebrating People with Lived Experience in the Creation of The Heart Hub

Learn more about the experiences of our patients and caregivers who helped contribute to the development of The Heart Hub.

Three Heart Failure Champions Share Their Stories

Meet Cindy, her father’s essential caregiver; Lori, a congenital heart disease patient who has lived with heart failure all of her life; and Noli, a man who has recently been diagnosed with heart failure. Discover what makes them unique and similar, and what they would like you to know about living with heart failure.

Appointment Tips for Non-English Speaking Patients

Managing your care when you are a non-English speaker can be difficult – watch Cindy’s tips for non-English speaking patients.

Our Resources

Glossary

Heart Health Glossary Advance Care Planning (ACP): The process of thinking about and communicating your wishes, ...

Caring for a Child with Heart Failure: Maddison and Lorelei

In June 2022, I welcomed my daughter Lorelei after a normal pregnancy. We had no indications of heart failure or congenital defects when I was pregnant or when she was a newborn. It wasn’t until Lorelei was three months old that I noticed the signs...

Research Outcomes and Reports

Digital Technology Application for Improved Responses to Health Care Challenges: Lessons Learned from ...