The Heart Hub

Always wondered what happens on a research project behind-the-scenes? Wanted to be part of a team interpreting all those results? Join the Heart Hub as we introduce the role of people with lived experience (PWLE) as partners in health research. In this session we will outline frameworks for engagement, provide examples of patient partners in action and share helpful resources and strategies to get involved. Anne Simard, TRANSFORM HF’s Director of Strategy and Translation, will co-present with PWLE partners Rene Adams, Heather Cartwright, and Todd Murray, who will also share their personal experiences with engaging in research. The webinar will conclude with a panel Q&A and information on how to participate in future trainings and research opportunities. REGISTER TODAY

TRANSFORM HF and The Heart Hub want to build and sustain a vibrant community of local People With Lived Experience (PWLE) who are "research-ready!" This free workshop series was co-developed by PWLE with the goal of training and empowering patients, caregivers, and family members. The three-session series is intended for heart function patients living in the Greater Toronto Area and does require in-person participation. 12 PWLE applicants will be admitted into the course based upon application selection criteria and with consideration to equity, diversity, and inclusion. A mix of theoretical content, experiential learning, and case studies will introduce foundational lessons and skills. Material will be delivered by researchers, health systems experts, and seasoned PWLE partners. The third and final workshop will involve collaborating with UHN Investigators on real-world projects, with the potential to be invited on as a PWLE partner. By the end of the course, graduates will be able to: Identify as a community of knowledgeable people with lived experience of heart disease ready to co-create with researchers. Describe the role of the patient partners in health research, assess its challenges and opportunities and evaluate own strengths and needs as a patient partner. Access and utilize patient-oriented research resources for […]