Over 50 of Canada’s top researchers in heart failure and healthcare technologies met virtually, this past February, with trainees and patients to pool our collective intelligence to tackle the grand challenge of inequity in health care.
Deadline to apply for a TRANSFORM HF Trainee Award today at 5 pm EST.
Join researchers, clinicians, engineers, and patient partners for presentations and networking opportunities at TRANSFORM HF's virtual Network Meeting. Register today! View the full agenda here or below.
Workshop Description Meaningful, impactful cardiovascular research must be grounded in the needs and priorities of patients, caregivers, and family members (People With Lived Experience, or PWLE). The voices of PWLE must be present as research is conceptualized, funded, executed and evaluated. An engaged and “partner-ready” community of PWLE partners who can be active and engaged members of research initiatives is needed to maximize the impact of research, meet the needs of research funders and assure the centrality of PWLE perspectives. This free, day-long workshop is designed to train PWLE to be active and engaged members of research teams and to begin to build a community across Canada. This “engaged and ready community of PWLE partners” will serve as a key step toward meeting the Canadian Institutes of Health Research’s (CIHR) strategy for patient-oriented research, which asserts that research be conducted with patients rather than to them. It is also central to the vision and value of the partners: HeartLife Foundation, CHF Alliance, and TRANSFORM HF. By building and supporting a vibrant PWLE partner community, we hope to foster more responsive research that best meets the needs of all people in Canada. This MasterClass is meant for those who are living […]
TRANSFORM HF and The Heart Hub want to build and sustain a vibrant community of local People With Lived Experience (PWLE) who are "research-ready!" This free workshop series was co-developed by PWLE with the goal of training and empowering patients, caregivers, and family members. The three-session series is intended for heart function patients living in the Greater Toronto Area and does require in-person participation. 12 PWLE applicants will be admitted into the course based upon application selection criteria and with consideration to equity, diversity, and inclusion. A mix of theoretical content, experiential learning, and case studies will introduce foundational lessons and skills. Material will be delivered by researchers, health systems experts, and seasoned PWLE partners. The third and final workshop will involve collaborating with UHN Investigators on real-world projects, with the potential to be invited on as a PWLE partner. By the end of the course, graduates will be able to: Identify as a community of knowledgeable people with lived experience of heart disease ready to co-create with researchers. Describe the role of the patient partners in health research, assess its challenges and opportunities and evaluate own strengths and needs as a patient partner. Access and utilize patient-oriented research resources for […]