A Heart’s Journey: A Patient and Caregiver Guide to Heart Transplant

A Heart’s Journey is an interactive webpage featuring expert insights, helpful tools, and, most importantly, real stories from people with lived experience. Through personal videos and interactive content, you’ll hear from individuals who have gone through the transplant process themselves.

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New Animated Videos: Supporting You on Your Heart Failure Journey

Our new videos serve as a valuable companion to our resource, Living with Advanced Heart Failure: Coping with Symptoms and Uncertainty. Together, these resources offer guidance on managing symptoms, adapting to change, and planning for the future with confidence.

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Introduction to Patient Engagement in Research Webinar

Always wondered what happens on a research project behind-the-scenes? Wanted to be part of a team interpreting all those results? Join the Heart Hub as we introduce the role of people with lived experience (PWLE) as partners in health research.

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Living with Advanced Heart Failure: Coping with Symptoms and Uncertainty

Download our new guide, Living with Advanced Heart Failure: Coping with Symptoms and Uncertainty, for tips on symptom management, self-care, and planning for the future.

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Heart Failure Medications: A Patient and Caregiver Guide

Understanding Guideline-Directed Medical Therapy for Heart Failure with reduced ejection fraction (HFrEF).

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Welcome to The Heart Hub, created with and for patients, caregivers, and their families.

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Our Partners

An Introduction to Living with Heart Failure

Hear from Paula, who has been living with heart failure, about the importance of living well and taking care of your health.

Heart Pulse

Harnessing the Power of Patient Agency: Celebrating People with Lived Experience in the Creation of The Heart Hub

Learn more about the experiences of our patients and caregivers who helped contribute to the development of The Heart Hub.

Our Stories

I May Look the Same, But…

Read Sharon's story about managing her career, personal life, and self-image following her heart failure diagnosis

Sharon Bray
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Heart2Heart Podcast Series

Join Anne Simard as she interviews Kyle, a husband, father, and heart transplant recipient in our Heart2Heart podcast series

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Isabel's tips for for Medication

Read Isabel's tips for medication and symptom management

Isabel Victal
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Juggling My Roles as a Caregiver

Read Cindy's story about juggling her career and caring for her father who lives with heart failure

Cindy
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1 Million

Canadians are Living with Heart Failure

60,000

Canadians are Diagnosed each Year

Most rapidly rising Cardiovascular Disease in Canada

Three Heart Failure Champions Share Their Stories

Meet Cindy, her father’s essential caregiver; Lori, a congenital heart disease patient who has lived with heart failure all of her life; and Noli, a man who has recently been diagnosed with heart failure. Discover what makes them unique and similar, and what they would like you to know about living with heart failure.

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Appointment Tips for Non-English Speaking Patients

Managing your care when you are a non-English speaker can be difficult – watch Cindy’s tips for non-English speaking patients.

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Our Resources

Paediatric Heart Failure

Developed in partnership with The Hospital for Sick Children (SickKids). The treatment of heart failure in children often depends on the cause of the underlying problem. Sometimes there are medical, surgical or catheter-based interventions that can be undertaken to either cure or reduce the symptoms of heart failure. Your child will be taken care of with a team that includes physicians, nurses, specialized dieticians who ensure optimal nutrition, and physical and occupational therapists who will provide assessments. Your child will be prescribed medicines to treat both the symptoms of heart failure and to improve or stabilize heart function. Child life specialists and social workers are available to help children and families dealing with the stress associated with a chronic illness. 
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Heart2Heart Podcast Series

Welcome to Heart2Heart, The Heart Hub’s podcast series dedicated to telling the stories of patients and caregivers ...
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Isabel’s LVAD Experience

Isabel lived with heart failure for 11 years before having a heart transplant in 2021. Self-care and self-management continue to be essential to her health. As part of her journey, Isabel lived with an LVAD. In this video, Isabel talks about what it is like to have one, what the day-to-day, and her tips and suggestions for others who are about to get an LVAD.
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